An Introduction to Spinal Muscular Atrophy - Dr. Bob Leshner
Pediatric neurologist, neuromuscular clinician, clinical trials researcher, and member of FightSMA's Scientific Advisory Committee, Dr. Bob Leshner provides an introduction to Spinal Muscular Atrophy (SMA) - a deadly crippler and the number-one inherited genetic cause of infant death. For more information on SMA, please visit http://www.fightsma.org.
Owner: FightSMA
25th Anniversary Families of SMA
A devasting condition with such a massive feeling of uncertainty and helplesness for the parents and carers.
Owner: FamiliesofSMA1
J. Robbins, Jawbox, and a Fight SMA T-shirt on Late Night with Jimmy Fallon
J. Robbins is the guitarist and lead singer of Jawbox, which made its first appearance since 1997 during the Jimmy Fallon show. Robbins' was front and center, wearing a Fight SMA t-shirt! His son, Callum, has spinal muscular atrophy, and in the past few years J. has become a great voice in the SMA community
owner: NBC
Spinal Muscular Atrophy Kids (Fight SMA)
A beautiful tribute to the sufferers of SMA
owner: stevenmullen
Extreme Makeover - Families of Spinal Muscular Atrophy PSA
Michael Moloney from the abc show records a quick message supporting Spinal Muscular Atrophy during the recent shoot for the Akers family in Ohio.
Owner: FamiliesofSMA1
Senator Clinton Supports Families of Spinal Muscular Atrophy
Senator Hillary Clinton supports the efforts of Families of Spinal Muscular Atrophy (SMA). She also lends her support to co-sponsor the SMA Treatment Acceleration Act.
Owner: FamiliesofSMA1
Fight Spinal Muscular Atrophy
From Fight SMA ( http://www.fightsma.org ), a powerful and gut-wrenching video made by a brave family about their young son Billy's fight against spinal muscular atrophy (SMA), the leading genetic killer of children under two.(less)
Owner: stevemullen
Senator Kerry Supports Families of Spinal Muscular Atrophy
An inspiring speech from Senator John Kerry as he recently addressed the Families of Spinal Muscular Atrophy (SMA) 2008 Conference. He commits his full support to the community, and announces his co-sponsorship of the SMA Treatment Acceleration Act.
Owner: FamiliesofSMA1
Spinal Muscular Atrophy Research Update
MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually.
Owner: SnakeRiverMDA
Curt Schilling Supports Families of Spinal Muscular Atrophy at Fenway Park
Red Sox pitcher Curt Schilling joins in the battle to find a cure for Spinal Muscular Atrophy. Curt met with SMA families and researchers to lend his support for helping the SMA community. www.curesma.org
Owner: FamiliesofSMA1
Ask the experts
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Question: Should I have SMA Carrier testing even if my other children are not affected??
Asked by Connie Burton
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Question: How do I ask my doctor about SMA carrier testing?
Asked by Luisa Koh
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Question: Is SMA as common as Cystic Fibrosis?
Asked by Barbara Hatcher
News & EventsAbout Athena SMA Awareness
Athena has been performing Spinal Muscular Atrophy (SMA) testing since 1996. This site was created to promote awareness of SMA - and help parents make informed decisions.
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